Society of Gynecologic Oncology Clinical Outcomes Registry: From small beginnings come great things.
Obstectrics and Gynecology, Oncology
Certification, Endometrial Neoplasms, Female, Genital Neoplasms, Female, Guideline Adherence, Gynecology, Humans, Medical Oncology, Outcome Assessment, Health Care, Ovarian Neoplasms, Practice Guidelines as Topic, Quality Assurance, Health Care, Quality Improvement, Registries, Reimbursement Mechanisms, United States, Uterine Cervical Neoplasms
OBJECTIVE: Clinical registries within medical societies have demonstrated the capacity to promote quality improvement. Opportunities for well-designed data repositories could yield reliable national standards for informing reimbursement, determining adherence to care guidelines, maintaining board certification, and developing bundled payment models. Looking to the future, we set out to develop a gynecologic cancer registry serving the members of the Society of Gynecologic Oncology (SGO).
METHODS: The SGO Clinical Outcomes Registry (COR) initiated a web-based data entry platform as a foray into developing a functional registry, compiling data elements specific to gynecologic oncology. Endometrial and ovarian cancer patients began enrollment in early 2014. Within one year, 19 sites were participating with the addition of cervical cancer patients in January 2015.
RESULTS: To date, >6500 patients are currently entered from 29 sites, and the COR is being queried to address topics of quality improvement, disparities, and cancer outcomes.
CONCLUSIONS: The SGO COR has proven the feasibility of developing a functional gynecologic cancer registry, with high uptake, rapid accrual, and ability to investigate topics of quality and outcome using the COR.
Dewdney, Summer B; Dancisak, Amy C; Lachance, Jason A; Grendys, Edward C; Dowdy, Sean C; Powell, Matthew; and Schorge, John O, "Society of Gynecologic Oncology Clinical Outcomes Registry: From small beginnings come great things." (2018). Maine Medical Center. 1700.