Communicating with Parents About Therapeutic Hypothermia and Hypoxic Ischemic Encephalopathy: Integrating a Palliative Care Approach into Practice

Document Type

Article

Publication Date

9-2024

Institution/Department

Pediatrics

Journal Title

Clinics in perinatology

MeSH Headings

Humans; Hypoxia-Ischemia, Brain (therapy); Palliative Care (methods); Parents; Infant, Newborn; Hypothermia, Induced (methods); Communication; Intensive Care Units, Neonatal; Professional-Family Relations; Decision Making, Shared; Patient Discharge

Abstract

Parents of newborns with hypoxic ischemic encephalopathy (HIE) can face communication challenges in the neonatal intensive care unit. Both specialty palliative care and primary palliative care trained clinicians can assist parents as they navigate traumatic experiences and uncertain prognoses. Using evidence-based frameworks, the authors provide samples of how to communicate with parents and promote parent well-being across the care trajectory. The authors demonstrate how to involve parents in a shared decision-making process and give special consideration to the complexities of hospital discharge and the transition home. Sustained investment to guide the development of effective communication skills is crucial to support families of infants with HIE.

First Page

711

Last Page

724

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